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HSRProj (Health Services Research Projects in Progress)

Information about ongoing health services research and public health projects


Emerging health care system and SLE.
(Archived Project)
Investigator (PI): Yelin, Edward
Performing Organization (PO): (Current): University of California, San Francisco, School of Medicine, Department of Medicine
Supporting Agency (SA): Agency for Healthcare Research and Quality (AHRQ)
Initial Year: 2003
Final Year: 2008
Record Source/Award ID: CRISP/R01HS013893
Award Type: Grant
Abstract: The proposed project, "The Emerging Health Care System and Persons with SLE", has two principal aims: 1) to describe the nature of the health care system used by persons with systemic lupus erythematosus (SLE) as it is evolving, particularly emerging developments in managed care and the effect of those developments on access to specialty services and, 2), to assess the impact of characteristics of that system on their health care utilization and long-term outcomes, especially for those from racial or ethnic minorities and/or from lower socioeconomic status. The data for the project derive from the UCSF Lupus Panel Study, in which about 1,000 persons with SLE will be followed prospectively for five years through annual structured telephone interviews, comprehensive review of medical charts, and analysis of biological material, including existing buccal DNA samples and blood specimens. The project will test a series of models in which medical and demographic characteristics of the persons with SLE (e.g. extent of organ involvement, overall health status, race/ethnicity, socioeconomic status), characteristics of their physicians (e.g. specialty, type of practice, demographics), formal type of health plan (HMO, preferred provider organization, point of service plan, fee-for-service), and characteristics of plan (e.g. limited access to specialists, limited drug formulary) combine to affect health care utilization and outcomes. The models will be tested by multivariate regression techniques. The project should provide information on the impact of managed care among persons with this specific condition prevalent among minority populations and will serve as a sensitive indicator of how members of minority groups with serious chronic conditions are faring in the contemporary health care marketplace.
MeSH Terms:
  • Data Collection
  • Health Services
  • * Health Services Accessibility
  • Humans
  • Lupus Erythematosus, Systemic /*therapy
  • * Managed Care Programs
  • Outcome Assessment, Health Care
  • Physicians /statistics & numerical data
  • Prospective Studies
  • United States
Keywords:
  • research support, U.S. Gov't, P.H.S.
Country: United States
State: California
Zip Code: 94122
UI: 20041560
Project Status: Archived