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Evaluating the Navajo Community Outreach and Patient Empowerment (COPE) program
Investigator (PI): Shin, Sonya
Performing Organization (PO): (Current): Brigham and Women's Hospital, Department of Medicine, Division of Global Health Equity / (617) 732-6340
Supporting Agency (SA): Patient-Centered Outcomes Research Institute (PCORI)
Initial Year: 2013
Final Year: 2018
Record Source/Award ID: PCORI/AD-1304-6566
Funding: Total Award Amount: $2,109,184
Award Type: Contract
Award Information: PCORI: More information and project results (when completed)
Abstract: Chronic health problems such as high blood pressure, high cholesterol, and diabetes are much more common among American Indian/Alaska Native (AI/AN) individuals, compared to all other racial/ethnic groups. Since 2009, Brigham and Women's Hospital (BWH), the Navajo Nation Community Health Representative Program (NNCHR), and Navajo Area IHS have worked together to create a program that focuses on helping people with these health problems who reside on the Navajo reservation in rural Arizona and New Mexico. COPE (Community Outreach and Patient Empowerment) promotes increased health knowledge and healthy lifestyles among individuals and families, while concurrently facilitating access to good health care services. COPE works in four areas, including 1) improving coordination between community health representatives and clinic providers; 2) improving CHR teaching skills through standardized training; 3) home-based, culturally sensitive teaching materials for patients and families; and 4) strong community health representative supervision. COPE started in two of the hospitals in Navajo Nation, and will expand to six more hospitals by 2016 in a stepwise fashion. This planned expansion provides an opportunity to understand if COPE is having a positive impact on people's lives. The goal of our research is to answer these questions: 1) Does the COPE project improve the health of patients who participate? 2) Does the COPE project empower patients, providing an increased sense of control over their lives and their health-related decisions? 3) What are the key ingredients to the success of the COPE Project? 4) How do other stakeholders (providers, community health representatives, and policy makers of health care systems) view COPE? Our proposal responds to PCORI's Addressing Disparities funding announcement by promoting a culturally appropriate, systems-level approach to an extremely vulnerable population of rural American Indians, who collectively suffer from high rates of chronic disease and poor health outcomes. Our existing team includes researchers, clinical providers, and community members, and uses community-based participatory methods to ensure that our research is driven by the community's own priorities.
MeSH Terms:
  • Arizona
  • Community Health Services /*organization & administration
  • Cultural Characteristics
  • Diabetes Mellitus /ethnology
  • /therapy
  • Health Policy
  • Health Promotion
  • Health Services Research
  • Humans
  • Hypercholesterolemia /ethnology
  • /therapy
  • Hypertension /ethnology
  • /therapy
  • Indians, North American
  • New Mexico
  • Outcome Assessment, Health Care
  • Power, Psychological
  • Program Evaluation
  • Vulnerable Populations
Country: United States
State: Massachusetts
Zip Code: 02115
UI: 20143385
Project Status: Completed
Record History: ('2017: Project extended to 2018.',)