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Advancing stated-preference methods for measuring the preferences of patients with type 2 diabetes
Investigator (PI): Bridges, John F P
Performing Organization (PO): (Current): Johns Hopkins University, Johns Hopkins Bloomberg School of Public Health, Department of Health Policy and Management, Center for Health Services and Outcomes Research / (410) 955-3625
Supporting Agency (SA): Patient-Centered Outcomes Research Institute (PCORI)
Initial Year: 2013
Final Year: 2018
Record Source/Award ID: PCORI/ME-1303-5946
Funding: Total Award Amount: $1,074,317
Award Type: Contract
Award Information: PCORI: More information and project results (when completed)
Abstract: Patient-centered outcomes research (PCOR) helps patients and stakeholders make informed health care decisions, allowing their voices to be heard in assessing the value of health care options, but information on what patients and stakeholders value is often lacking. The values of patients and stakeholders can be identified by actively engaging them through consultation or by applying stated-preference methods to measure their priorities and preferences. Although both approaches are important, stated-preference methods have several advantages. They can incorporate both qualitative and quantitative methods and they can be used with large, diverse populations, including hard-to-reach patients and stakeholders. The validity, reliability, and generalizability of the findings of stated preference studies can be assessed. Finally, the preferences of different sub-groups can be compared and groups of individuals with similar preferences can be identified and described. Our proposal focuses on advancing and disseminating methods for patient and community engagement in PCOR and has three objectives. First, we will demonstrate good practices for patient and community involvement in PCOR projects by applying principles of community-based participatory research (CBPR). Second, we will address several key methodological questions pertaining to the use of stated-preference methods. As outlined in the specific aims, these include identifying the best methods for identifying patient priorities (aim 1), the best method for designing preference studies (aim 2), and strategies for analyzing variation in preferences (aim 3). We also seek to assess the relevance of stated-preference methods to patients and stakeholders (aim 4). Third, we will demonstrate good practices for applying stated-preference methods by studying the priorities and preferences of patients with type 2 diabetes. Type 2 diabetes was chosen because it is a chronic disease that requires meaningful patient involvement to improve outcomes. Type 2 diabetes affects 25.8 million people (8.3%) in the U.S. and disproportionately affects African American and Latino populations. While type 2 diabetes provides an important case study, our research will advance approaches and methods that will be broadly generalizable to other diseases, and to diverse patient and stakeholder groups. To facilitate the dissemination of our findings, we have engaged a local community board and a national diabetes advisory panel who will be engaged via regular meetings, a quarterly newsletter and a project website. Our dissemination plan will focus on the dissemination of lay explanations of our methods and results and document case studies of our patient/community engagement and application of stated-preference methods to type 2 diabetes. More on this project: Yan K, Bridges JF, Augustin S, Laine L, Garcia-Tsao G, Fraenkel L. Factors impacting physicians' decisions to prevent variceal hemorrhage. BMC Gastroenterol. 2015 May 2;15:55. doi: 10.1186/s12876-015-0287-1. PubMed PMID: 25934271; PubMed Central PMCID: PMC4423490. Hollin IL, Peay HL, Bridges JF. Caregiver preferences for emerging Duchenne muscular dystrophy treatments: a comparison of best-worst scaling and conjoint analysis. Patient. 2015;8(1):19-27. doi: 10.1007/s40271-014-0104-x. PubMed PMID: 25523316.
MeSH Terms:
  • African Americans
  • Community-Based Participatory Research
  • Decision Making
  • Diabetes Mellitus, Type 2 /ethnology
  • /*therapy
  • Hispanic Americans
  • Humans
  • Outcome Assessment (Health Care)
  • Patient Participation
  • * Patient Preference
  • Patient-Centered Care
  • Program Development
  • Research Design
  • United States
Country: United States
State: Maryland
Zip Code: 21205
UI: 20143588
CTgovId: NCT02637609
Project Status: Completed
Record History: ('2017: Project extended to 2018',)