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Extended family model of diabetes self-management education (DSME) to reduce disparities in a US Pacific Islander community
Investigator (PI): Kohler, Peter O
Performing Organization (PO): (Current): University of Arkansas for Medical Sciences / (479) 713-8000
Supporting Agency (SA): Patient-Centered Outcomes Research Institute (PCORI)
Initial Year: 2014
Final Year: 2019
Record Source/Award ID: PCORI/AD-1310-07159
Funding: Total Award Amount: $2,163,228
Award Type: Contract
Award Information: PCORI: More information and project results (when completed)
Abstract: The Marshallese population suffers from a significant and disproportionate burden of type 2 diabetes. The rate of type 2 diabetes among the Marshallese is one of the highest of any population group in the world--at least 400% higher than the general US population. Prior attempts to implement diabetes self-management education (DSME) in Marshallese populations have failed to produce even short-term results. Based on qualitative interviews using a CBPR process, we hypothesize that an adapted extended family model of DSME, based on the collectivist, family-centered values of the Marshallese community, will result in better diabetes management outcomes compared to traditional DSME. Using a community-based participatory research (CBPR) approach and an interdisciplinary research team, we will employ the cultural adaptation process (CAP) to modify and test the DSME as implemented within an extended family model. Aim 1 is to adapt the DSME for implementation within an extended family model. Aim 2 is to conduct a comparative effectiveness evaluation using a randomized control trial design that compares the results of the extended family model of DSME with traditional DSME. Two local Marshallese organizations, two community co-investigators from the Marshallese community, three community clinics, 31 Marshallese stakeholders, and an extended group of Marshallese, Pacific Islander, and diabetes experts were involved in this grant application and will continue to be involved throughout the research process. This research is highly translational. The impact of the study will help bridge the gap between knowledge of an effective DSME intervention and actual implementation of the intervention among a Pacific Islander population with especially high rates of type 2 diabetes and significant health disparities.
MeSH Terms:
  • Community-Based Participatory Research /methods
  • Comparative Effectiveness Research
  • Cultural Characteristics
  • Diabetes Mellitus, Type 2 /*prevention & control
  • /*therapy
  • * Family
  • Health Status Disparities
  • Healthcare Disparities
  • Humans
  • Interdisciplinary Communication
  • Micronesia
  • Pacific Islands
  • Patient Education as Topic /*methods
  • Randomized Controlled Trials as Topic
  • Self Care /*methods
  • United States
Country: United States
State: Arkansas
Zip Code: 72703
UI: 20152031
CTgovId: NCT02407132
Project Status: Completed
Record History: ('2019: Project extended to 2019. 2017: Project extended to 2018.',)