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Feasibility of implementing patient-reported outcome measures
Investigator (PI): Scholle, Sarah
Performing Organization (PO): (Current): National Committee for Quality Assurance / (202) 955-3500
Supporting Agency (SA): Patient-Centered Outcomes Research Institute (PCORI)
Initial Year: 2015
Final Year: 2018
Record Source/Award ID: PCORI/ME-1402-10788
Funding: Total Award Amount: $689,407
Award Type: Contract
Award Information: PCORI: More information and project results (when completed)
Abstract: The purpose of this project is to find new ways to show how well health care is meeting patients' needs. Patient-reported outcome measures (PROMs) are questionnaires that ask patients about their daily activities and feelings. These questions have been used in research before to determine how well treatments affect patients, but not in routine visits to doctors and clinics. We do not know how patients, doctors, and others in the care team would use the information and whether patients or their doctors would find it useful. Our goals for this project are (1) to show how patients, doctors, and other members of their clinical care team can use PROMs in care planning; and (2) to see how meaningful and valuable it is to patients and their clinical care team to use PROMs in care planning. Specific questions to answer this include: How do patients view PROMs? How do clinical care teams view PROMs? How do the clinical care team and patients use the PROMs in developing a care plan? How meaningful are changes in the PROM score over time? How feasible/meaningful is setting targets using PROMs? We will look at possible differences in the use of PROMs for care planning and views about PROMs based on patients' race, ethnicity, and understanding of health. Our team includes patients and experts in measuring the quality of health care and in gathering data from patients. We will work with patients, clinicians, and staff in clinics in Connecticut and Oklahoma. We will work with patients and health care teams to identify which questionnaires to use and to plan how to use these questionnaires to make care plans for patients. We will test these steps for 400 patients with diabetes at a starting point (a baseline) and again after three months have passed (for follow-up). We will use the information we gather to look at how patients' answers to the PROMs change from baseline to follow-up. We will interview patients and care team members to learn how the information is used and whether it is helpful in caring for one's self or in providing care. This study will provide important information about how to use PROMs in the care of patients with chronic conditions. We will study whether this differs for people who have problems reading or understanding health information and for people of different cultural backgrounds. This project will give us new information about how to improve health. This study will also help us to understand how to evaluate health care teams using PROMs. In the future, measures based on this work will be available for health care teams to improve care and for public and private payers of health care to separate high-quality care from low-quality care. If this study is successful, patients will have new ways to tell their health care teams about their health needs and get help they need in addressing those needs.
MeSH Terms:
  • Chronic Disease
  • Connecticut
  • Health Services Research
  • Humans
  • Oklahoma
  • * Outcome Assessment, Health Care
  • Patient Care Team
  • Patient Participation
  • * Patient-Centered Care
  • Program Evaluation
  • Quality of Health Care
Country: United States
State: District of Columbia
Zip Code: 20005
UI: 20152292
Project Status: Completed
Record History: ('2017: Project extended to 2018.',)