NLM logo

National Information Center on Health Services Research and Health Care Technology (NICHSR)

HSRProj (Health Services Research Projects in Progress)

Information about ongoing health services research and public health projects

Patient-centered SCAlable National Network for Effectiveness Research (pSCANNER): phase II
Investigator (PI): Ohno-Machado, Lucila
Performing Organization (PO): (Current): University of California, San Diego, School of Medicine, Department of Medicine, Division of Biomedical Informatics / (858) 822-4931
Supporting Agency (SA): Patient-Centered Outcomes Research Institute (PCORI)
Initial Year: 2015
Final Year: 2018
Record Source/Award ID: PCORI/CDRN-1306-04819 Phase II
Funding: Total Award Amount: $9,378,814
Award Type: Contract
Award Information: PCORI: More information and project results (when completed)
Abstract: Opportunities to use health information for research are often missed because the entities with information, such as patients, hospitals, emergency departments, urgent care centers, outpatient practices, pharmacies, and payers, cannot easily collaborate with each other to share ideas and information. The patient-centered SCAlable National Network for Effectiveness Research (pSCANNER) is a clinical data research network that is contributing to PCORnet to close this gap. pSCANNER's mission is to generate scientific evidence to inform health decisions that are important to patients, clinicians, and other stakeholders by bringing these stakeholders together to foster collaboration, and by making the health data more accessible and usable. pSCANNER has a robust governance system that supports collaboration and provides all stakeholders the opportunity to inform pSCANNER policies and procedures. These stakeholders provide input to prioritize research topics; design research studies; and create educational, recruitment, and communication strategies to improve pSCANNER's mission. pSCANNER partners use common processes to make their data (e.g., electronic health record, clinical, claims, pharmacy) easily usable so they can be combined and so research methods can be applied by all partners. The security, privacy, and confidentiality of identified patient data are maintained using national standards in Health Insurance Portability and Accountability Act of 1996-compliant environments. pSCANNER focuses on three conditions: congestive heart failure, Kawasaki disease, and obesity. Patients, patient advocates, researchers, and clinicians from these conditions participate in every aspect of pSCANNER decision making and governance. Fully realized, pSCANNER has the potential to cover over 32 million patients diverse health systems in the Western United States.
MeSH Terms:
  • * Access to Information
  • Clinical Pharmacy Information Systems
  • * Comparative Effectiveness Research
  • Data Collection
  • Electronic Health Records
  • Health Insurance Portability and Accountability Act
  • Humans
  • Insurance Claim Review
  • * Medical Informatics
  • Outcome Assessment, Health Care
  • Outpatients
  • Patient-Centered Care
  • Program Development
  • United States
Country: United States
State: California
Zip Code: 92121
UI: 20162081
Project Status: Completed
Related Records: Patient-oriented SCAlable National Network for Effectiveness Research (pSCANNER)