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Information about ongoing health services research and public health projects
| A systematic review of racial preferences in parental decision making in pediatric health care | |
|---|---|
| Investigator (PI): | Harris, Vandra; Walsh, Jonathan; Boss, Emily; Tunkel, David; Lee, Andrew; Schoo, Desi; Links, Anne |
| Performing Organization (PO): |
(Current): Johns Hopkins Medicine, Department of Otolaryngology--Head and Neck Surgery / (410) 955-1080 |
| Supporting Agency (SA): | Agency for Healthcare Research and Quality (AHRQ) || National Institutes of Health (NIH), National Institute on Deafness and Other Communication Disorders (NIDCD) |
| Initial Year: | 2016 |
| Final Year: | 2017 |
| Record Source/Award ID: | PROSPERO/CRD42017074171 ; RePorter/K08HS022932 ; RePorter/T32DC000027 |
| Award Type: | Contract |
| Abstract: | Review question: How does race/ethnicity influence the treatment decisions that parents/caregivers make for children? Searches: We will perform a qualitative systematic review of five electronic databases (PubMed, Scopus, Web of Science, PsycINFO, The Cochrane Library, and Embase) using combinations of the following key terms and synonyms in English language publications: "decision making," "parent," "child," "pediatric," "race," and "ethnic groups." A university librarian will oversee the database search for completeness and reproducibility. No article publication date or study type restrictions will be imposed, but any studies which have been conducted outside the United States will be excluded. Types of study to be included: There will be no restrictions imposed on study type. We will include quantitative or qualitative studies, published in the English language, and involving at least one ethnic minority group, which have reported on differences in racial preferences in decision making in pediatric health care. In order to be eligible for inclusion in the review, the studies must have specifically addressed a treatment decision that was made. No specific timeframe for article publication will be specified. We will exclude studies pertaining to the care of patients 18 years of age or older, studies without written abstracts, review articles, studies not written in the English language, and studies not conducted in the United States. The condition or domain being studied is medical decision making. Participants/population are pediatric patients of at least one ethnic minority group in the United States. Studies pertaining to the care of patients 18 years of age or older will be excluded, as will studies which have been conducted outside the United States. Intervention(s), exposure(s) are racial preferences in treatment decision making in pediatric health in the United States. Comparator(s)/control: Not applicable. Primary outcome(s) are treatment decisions. Secondary outcome(s) are differences in treatment decisions by race/ethnicity. Data extraction (selection and coding): Titles and abstracts will be initially assessed to eliminate those not related to the stated topic, and title and abstract screening will be performed independently by seven reviewers. Studies which will be eliminated will include generalized treatment preferences, reviews, cross-national studies, studies including adult subjects, and studies lacking primary data. The articles which meet the inclusion criteria will then be read in full, and the coauthors will independently perform data extraction according to PRISMA guidelines and using a predesigned data extraction form. If, on review, an article no longer appears to meet the inclusion criteria, the reason(s) for this will be noted and the article excluded from the review, but if, after this full text analysis, an article is still found to have met the inclusion criteria, the data will be extracted for use in the review. The data to be extracted will include the author, institution, study population, study methods, treatment decisions and themes. Risk of bias (quality) assessment: The Cochrane Collaboration's risk of bias tool will be used for the assessment of the quality of the included studies. Strategy for data synthesis: A thematic analysis will be used to synthesize all qualitative and quantitative data. Analysis of subgroups or subsets: None is planned. |
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| Country: | United States |
| State: | Maryland |
| Zip Code: | 21287 |
| UI: | 20182031 |
| Project Status: | Completed |
| Record History: | ('Partial funding from T32DC000027 from the National Institute on Deafness and Other Communication Disorders (NIDCD) for research training in otolaryngology.',) |
