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Comparative effectiveness of health system-based versus community-based dementia care
Investigator (PI): Reuben, David
Performing Organization (PO): (Current): University of California, Los Angeles, UCLA Health, David Geffen School of Medicine, Department of Medicine, Division of Geriatrics / (310) 206-8272
Supporting Agency (SA): Patient-Centered Outcomes Research Institute (PCORI)
Initial Year: 2018
Final Year: 2024
Record Source/Award ID: PCORI/PCS-2017C1-6534
Funding: Total Award Amount: $13,605,130
Award Type: Contract
Award Information: PCORI: More information and project results (when completed)
Abstract: Description of the problem: In the United States, an estimated 5.5 million persons are affected by Alzheimer's disease, the most common type of dementia. In addition to the effects on memory and other brain functions, dementia is commonly complicated by difficulties with getting around and falls, swallowing disorders and pneumonia, and behavioral problems such as agitation, aggression, depression, and hallucinations. These complications often lead to caregiver stress, burnout, and medical illnesses. This study compares two different approaches to managing persons with dementia and helping their caregivers. Outcomes: We aim to determine whether care management for persons with dementia and their caregivers is better provided in the health system or in the community with the goals of reducing behavioral problems and keeping people with dementia in their homes while reducing caregiver stress and depression. Brief background on why this project is important to patients: Although several promising models based within health systems and in the community have been developed and evaluated, the best approach is uncertain. By determining which approach is more effective, steps can be taken to widely disseminate the findings and ensure that every American with dementia has access to needed dementia care. Explanation of how patients and other stakeholder partners will help to make the project successful: Patients and other stakeholders have already been involved in identifying preferred goals for dementia care, and this study includes evaluating these goals as outcomes of the study. Going forward, a study advisory committee will include a diverse group of patients and other stakeholders that will oversee the study. In addition, local and national patient and stakeholder committees will be involved in every step of the research, including facilitating recruitment of participants, creating educational materials, communication, and dissemination of findings.
MeSH Terms:
  • Accidental Falls /prevention & control
  • Alzheimer Disease /*therapy
  • Behavior
  • Caregivers
  • Community Health Services /*organization & administration
  • Comparative Effectiveness Research
  • Dementia /*therapy
  • Depression /complications
  • /prevention & control
  • Health Services Accessibility
  • Health Services Research /*organization & administration
  • Humans
  • Outcome Assessment, Health Care
  • Stress, Psychological
  • United States
Country: United States
State: California
Zip Code: 90095
UI: 20191540
Project Status: Ongoing