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| Comparing patient-reported impact of COVID-19 shelter-in-place policies and access to containment and mitigation strategies, overall and in vulnerable populations | |
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| Investigator (PI): | Pletcher, Mark |
| Performing Organization (PO): |
(Current): University of California, San Francisco, School of Medicine, Department of Epidemiology and Biostatistics / (415) 476-2300 |
| Supporting Agency (SA): | Patient-Centered Outcomes Research Institute (PCORI) |
| Initial Year: | 2020 |
| Final Year: | 2023 |
| Record Source/Award ID: | PCORI/COVID-2020C2-10761 |
| Funding: | Total Award Amount: $4,913,453 |
| Award Type: | Contract |
| Award Information: | PCORI: More information and project results (when completed) |
| Abstract: | Policymakers have a critical role to play in the COVID-19 pandemic. Their decisions about how fast to reopen society and lift shelter-in-place orders will directly impact infection rates, and also determine how severely people are harmed by policies that continue to restrict the population's ability to work and interact with other people. These are excruciating decisions. While policymakers have easy access to daily counts of cases, hospitalizations, and deaths from COVID-19, they currently do not have access to the patient perspective. Policymakers need information about how these harms are actually impacting the populations they serve, and how successful their policies are at providing access to resources meant to contain and reduce effects of the pandemic. Our proposal will compare the impact of policymaker decisions in different states, counties and health systems across the US, and will focus particularly on the impact in communities that are most vulnerable to harms due to their economic situation, employment, housing, location (e.g., rural or low-income), or burden of medical comorbidities. To get the information policymakers need, we must directly ask the people that are in harm's way. To do this, we have launched COVID-19 Citizen Science and recruited over 20,000 individuals across the US that are self-reporting daily symptoms of COVID-19 along with behaviors and information about how they feel, whether their families are having trouble paying for basic needs like food and housing, and other ways they may be harmed by the pandemic. However, our participants are currently concentrated in California, relatively few are African American or low-income or otherwise from a vulnerable community, and we do not have critical information like test results or whether people ended up getting very sick and getting hospitalized. For this project, we will recruit people across the US, especially African Americans, Hispanic/Latinx, and Native Americans persons living in rural or low-income zip codes, and others who are vulnerable to infection or other harms from the pandemic. Our participants--we call them "Citizen Scientists"--will fill out surveys, and provide us access (if they are willing) to their medical records. We will also talk in-depth to a small set of Citizen Scientists from vulnerable communities, and to policymakers that we hope will use our study results, and ask them to help us design our study to be relevant, make it successful at collecting data, and help us spread the word about our results so they can be used to reduce harm from the COVID-19 pandemic. |
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| Country: | United States |
| State: | California |
| Zip Code: | 94158 |
| UI: | 20211436 |
| Project Status: | Ongoing |