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Information about ongoing health services research and public health projects


Quality of dying and death in persons with AIDS.
(Archived Project)
Investigator (PI): Patrick, Donald Lee
Performing Organization (PO): (Current): University of Washington, School of Public Health
Supporting Agency (SA): Agency for Healthcare Research and Quality (AHRQ)
Initial Year: 1997
Final Year: 1999
Record Source/Award ID: CRISP/R03HS09540
Award Type: Grant
Abstract: The aims of this project are to: l) use qualitative interviews and draft questionnaire to develop and select items for an instrument administered to loved ones and health care providers after a patient's death from AIDS that can be used in evaluation of the quality of dying and death; 2) assess the psychometric properties (measurement model, internal consistency, discriminate validity, and convergent validity) and respondent burden of the instrument; 3) compare physiciancasework evaluations with that of family and friends. Up to 3 loved ones and 3 health care workers will be interviewed following the deaths of up to 40 persons with AIDS to elicit domains and items that evaluate the quality of dying of death of the person with AIDS and to pilot existing questions. Respondents will be asked to describe last 7 days of person's life in detail. Content of final instrument to be determined by psychometric evaluation of existing items, new domains and items, and comparability among loved ones and health care workers.
MeSH Terms:
  • Acquired Immunodeficiency Syndrome /*mortality
  • /*psychology
  • Caregivers
  • Humans
  • Pilot Projects
  • * Psychometrics
  • * Quality of Health Care
  • Reproducibility of Results
  • Sensitivity and Specificity
  • Terminal Care /*standards
  • United States
Keywords:
  • AIDS
  • allied health personnel
  • behavioral /social science research tag
  • clinical research
  • death
  • family
  • health care quality
  • health care service evaluation
  • health services research tag
  • human data
  • interview
  • locus of control
  • outcomes research
  • physician
  • psychometrics
  • questionnaire
  • research support, U.S. Gov't, P.H.S.
  • terminal patient care
Country: United States
State: Washington
Zip Code: 98103
UI: 98101370
Project Status: Archived